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« Does this MRI Report look good from a surfing point of view? | Main | Seneca, surfing and myelopathy/Lyme »

November 17, 2009

Comments

allie

the way your lucks running at the mo alex i'd be carfull what you say, even in jest. Isn't lymes disease caused by rat wee ? I'm not even going to ask where the hell you picked that up from. x

Dave Patterson

Time to buy a lottery ticket dude.

Neil Watson

Alex,

I'm laid up with flu, feeling terrible. Just read your latest instalment, and realise how lucky I am.

A friend had an op years ago to remove a disc from his spine, and he recovered to surf normally.

Fingers crossed.

Jaydee_97

Hi, in response to Allie (the first comment), I'm so so disappointed that despite all the tick awareness work that goes on in this country, still no-one seems to know about it:-( Of course, rat wee causes Weil's Disease, Lyme is caused by a tick bite (most people don't remember one). They are 2 very very different diseases.

Alex, have you had a positive NHS blood test? Lyme can cause allsorts of problems, certainly including neck pain and walking problems. If you are being treated with a low dose of antibiotics according to the HPA guidelines, it is unlikely to be enough though.

I have Lyme myself, went undiagnosed for 3 years, and know only too well what it can do. Please continue to research to make sure you are getting the right level of treatment. You may actually not need an op, which I realise may sound ridiculous on the basis of your MRI report.

If you don't already know, there is a yahoo group called Eurolyme where you can talk to other people about your problems and ask questions. Feel free to contact me too, I'll be happy to help. Does my email address come up on my profile or anything? If not I'll just post it here.

Jan

Kara

Came across your post this morning on my google alerts for Lyme Disease. I have Lyme Disease and went undiagnosed for 7 years after becoming ill. I had trouble walking, talking, thinking, sleeping, eating, weight loss, pain, pain and more pain. First, I want to tell you, life gets better! I have recovered probably 80% in the last 2 years since diagnosis.

I strongly agree with "Jaydee" that you need to pursue research so you can have a full recovery. First, seek treatment from a lyme literate physician. They are usually referred to as an LLMD. I know there are some good ones in the UK. The facebook group I'm on has many people from the UK on it that are getting treated. I should be able to find someone else with Lyme near you and put you in touch if I look around on my support groups a little. Just let me know ... I'm in the US.

This statement made to you by your doctor: "The doc said it's "very unlikely" that my neck pain and walking problems are caused by Lyme." IS DEAD WRONG. The medical community at large does NOT understand Lyme and are ignorant for the most part. This is why it is very important to find a lyme literate physician as soon as possible.

In my opinion, it is HIGHLY LIKELY that your neck pain and walking problems are directly caused by Lyme and will resolve with proper treatment. These are some of THE MOST prominent symptoms Lyme and co-infections produce.

Depending on the patient, recovery can take anywhere from months to years. But you will improve and recover.

I hope this gives you hope and the courage to move forward. There are a lot of support groups online for Lyme and tons of info. Please feel free to email me if you'd like at 86wildchild at sbcglobal dot net.

Have a great day! ~Kara

Yves

Hi Alex. I quick note on Lymes. One of my mates has it and she says it is important you find somebody that specialises in lymes. It is not very common in the UK compared to the rest of Europe so it is not diagnosed and treated very well here. I know there is a specialist in Newcastle upon Tyne somewhere, although I suspect that is little help. Anyway try and find an expert in Lymes before you do anything else would be my advice and as for surfing again, anything is possible! Good luck!

Acai Optimum

Love the insight. Thanks for a wonderful job.

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